Something i've learnt along this journey is celebrate the weird anniversaries that come along with it, so it may seem crazy but Monday 8th October saw me celebrate my 80th round of chemo. Apparently not quite a world record yet but potentially the hospital record, oh well we celebrated it anyway with cupcakes (well the… READ MORE
I am aware many of you have been asking and waiting to find out if the SIRT treatment that Sam received back in June and July was successful. On Monday (17th Sept), after a lot of waiting, Sam went to her appointment with Dr Awesome and was told that SIRT treatment has been successful in… READ MORE
This little alien is a pain in the arse...
As many of you know throughout my entire treatment i have gained IV access to my chemotherapy via a portacath which is inside my chest wall and is meant to enable easy access. Trust me it has been a god send, i can swim, play football, do crazy stuff and not have to worry about… READ MORE
Platelet Party is over!!!
Amazingly and probably a little bit to my surprise i felt absolutely fine after the Prep and although a little tired and my wrist a little sore, everything seemed all good! Removing the little air band preventing the blood from squirting out of my artery was quite a simple task and no blood. All seemed… READ MORE
SIRT Time.... by Vicky 🙂
As I sit here at the hospital waiting for Sam to come back from her second lot of SIRT (5th July), I reflect on her first round about a month ago - which felt a lot more unknown. Having been prepared for every side affect and risk under the sun previously, the procedure seemed very… READ MORE
The wait began as we finished the procedure with three options: Procedure will be a NO go if blood (the dye) is being moved from the liver to lungs - meaning its too dangerous to go ahead. Will have to go in and coil off more areas to prevent blood flow to other organs if… READ MORE
No not meal prep like the usual. Selective internal radiation therapy(SIRT) preperation and anngiogram. This was the start of SIRT and the vital bit in terms of wether this procedure would be able to go ahead. This would be determined by preventing all blood shunting from liver to other organs, surgeon feeling it was appropriate… READ MORE
Scariest appointment of my life...
This has all been a massive whirlwind and the actual appointment and moving forward with the procedure happened a lot sooner than we all expected or thought. This started with an appointment with Dr Serious, one that probably naively was going to be a breeze and just give us a little run down of SIRT.… READ MORE
SIRT what is it?
SIRT - known as selective internal radiation therapy is a relatively new procedure in the medical world from what we know and has just gone through a very in depth and successful trial in England that spanned over a number of years. This data all needs to be collected and evaluated and within the next… READ MORE
Ablation or not?
Knowing how busy the MDT teams are the wait was on for whenever Dr Strong Name could have a little look at it. Turned out this was quicker than expected and Dr Awesome appears to have news this week instead of next. After reviewing my scans then tumours are to highly vasculated (too much blood… READ MORE
Back round to this three monthly routine of scan, wait and results and all the anxiety that comes with each of those. After the previous stable scan we were keeping our fingers crossed for more of the same... off to CT I go and the wait begins. Results are back or are they? Turns out… READ MORE
Are you okay?
Are you okay? The answer is i never know Yes on the surface i am Still trying to be Sam Are you okay? The answer is probably no I want to cry and hope this is all a lie Are you okay? Sometimes the answer is yes I have and am truly blessed Surrounded by… READ MORE
Music - Whats your soundtrack?
Music is something i haven't always appreciated the importance of, mainly because i have an absolute lack of rhythm, no understanding of tone and cant even clap along to a simple beat (its a big problem). I also have a bad habit of making up the lyrics to songs that i think fit. I have… READ MORE
Just cant catch a break this month...
After the previous round of chemotherapy and the issue with the extravasation all i wanted was a relatively straight forward round of chemotherapy if that actually exists. Wednesday came round as it does every two weeks even though it feels like you only walked out of the hospital a few days ago. It has a… READ MORE
Extravasation- what even is that?
Well last Thursday presented a new problem, woke up with a dead arm and a really sore shoulder but port seemed normal so must have just slept funny. In the search of more sleep which is difficult to obtain I try and get a few more zzz's! A few hours later I wake, this time… READ MORE
Denial - winner and loser!
Denial is a complicated emotion and one that I haven't really spoken about or broached at all but constantly it pops up or is a term used to describe a way of dealing with difficult situations. Denial has never really been paramount for me mainly because, other than potentially the first few days, it has… READ MORE
Life is best when shared with family and friends. As Christmas draws to a close, the turkey is finally finished and the tree nearly taken down it is a time to reflect. Christmas isn't about the presents under the tree or the food you eat ( although there must be pigs in blankets), it's about the… READ MORE
Stable and more...
After one little scare of November of which by the way my CT turned out to be all clear on my chest so it wasn't that creating the chest pain - another mystery maybe from all the sneezing. Well in the same process of this they scanned my liver, earlier than expected but means not… READ MORE
Not the start to November i wanted... out of control!
Well the 1st of November came round and guess what, it was a chemo day. The day started off really well with a relaxing reflexology session - yes i survived someone touching my feet for at least an hour - weirdly i think it may have given me back some of the feelings in my… READ MORE
What makes you smile...
Sometimes its the little things that make us just as happy and make us smile as much as the big thought our gestures. So after reading 'Reasons to stay alive' by Matt Haig, it made me think about little things that make us smile on a regular basis. This list is by no means every… READ MORE
#KICKCANCERCUP 2017 - Guest Blog
GUEST BLOG - Thank you Jade Hill... Finally, the day was here. The evening of 27th of September brought the third running of the Kick Cancer Cup. This is where a team of Sam’s XI against a team of S-Tech league representatives compete in order to raise money for Addenbrookes oncology unit. After many months… READ MORE
Its the little things...
A long running question and questions that are seen on various support sites is people asking what they can do to help... many of us in this situation don't really know the answer. In my opinion this is for various reason; we don't know what helps, this journey is new for us too, we don't… READ MORE
That was the 6 letter word i needed...
Wow that was one hell of a week!!! Some of you may have been aware, guessed or worked out it was roughly that time for my 3monthly scan. This time it's safe to say scanxiety had well and truly hit me smack in the face. Having the date a whole six weeks prior was not… READ MORE
Don't count your chickens too soon!
Following my most recent round of chemo, I felt i had got off quite lightly, aside from the minor A&E visit, I'd managed to celebrate Seb's anniversary, support Vicky at Watford and still made it to La Tomitina the following week. This was about to change 🙁 Knowing that going to clinic with a cough… READ MORE
Too good to be true...
Chemo last Wednesday, not the smoothest thanks to my body temperature. Thank you Cauchi for the company and finally we got out of there after numerous prods of a thermometer in my ear. Not the greatest start however Thursday comes round and i seem to have loads of energy, off to Watford we head. Friday expecting… READ MORE
Hair Today Gone Tomorrow...
As many of you may know i have never been very daring or different with my hair it tends to get stuck in a style for too long. Although i don't do much with my hair, the thought of losing it was one of the scariest things of this whole experience, it wasn’t about losing… READ MORE
Birthday…another year older!!
Sorry for the lateness of this post, you'll be surprised to hear I had a busy summer...updates are on their way... Thursday 27th July 1989 that was the day of my birth and this year is the 28th birthday i have had. These birthdays have been spent over a vast variety of countries, with numerous… READ MORE
I have been very lucky and managed to cross off some amazing things off of my bucket list (below) and some shown in the collage are the ones i have completed. Thanks to all the people who have provided me the opportunity, organised these events, joined me, photographed it and shared these amazing moments with… READ MORE
D9 i tried my hardest to avoid it 🙁
D9 has been somewhere since the beginning people have talked about like avoid at all costs, unfairly or not, my opinion is lets just avoid all hospital admissions at all costs. As you will know though from reading my blog i have had a few, still not many, but enough to have tried a few… READ MORE
Spondylolisthesis no its not a type of dinosaur…
No its not a spinosaurus (bigger than a T-Rex) thankfully it doesn't look like something you would wanna mess with, at the moment id rather take on this spondylolisthesis. Spondylolisthesis is where a bone in the spine (vertebra) slips out of position, either forwards or backwards. It's most common in the lower back (lumbar spine),which… READ MORE